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Breastfeeding & Down Syndrome ResourcesPrint resourcesDanner, S. and Cerutti, ER. Nursing Your Baby with Down Syndrome. Waco, Texas: Childbirth Graphics, 1984. Good Mojab, C. Congenital disorders in the nursling. Unit 5. Lactation Consultant Series II. Schaumburg, IL: La Leche League International, 2002. La Leche League International. Breastfeeding a Baby with Down Syndrome. Schaumburg, IL: La Leche League International, 1997. LLLI pamphlet providing education and support for breastfeeding a baby with Down Syndrome. (No 528-24 in the LLLI catalog.) La Leche League International. The Womanly Art of Breastfeeding Sixth edition. Schaumburg, IL: La Leche League International, 1997, ISBN 0452279089. pp. 290-291. Mohrbacher, N. and Stock, J. The Breastfeeding Answer Book, Revised ed. Schaumburg, Illinois: La Leche League International, 1997. pp. 304-08. Naseef, R. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child With a Disability. Carol Publishing Group, 1997, ISBN 1559723777. The author, a psychologist and father of a child with autism, helps parents come to terms with their own feelings surrounding their special needs children and explains the need for nurturing and loving guidance for these children. The joys and frustrations of life with a disabled child are candidly and realistically portrayed. Includes a long list of resources and a bibliography. More information. Rosenfeld-Johnson S. Preventing Oral-Motor Problems in Down Syndrome. Advance for Speech-Language Pathologist and Audiologists 4 August 1997. This article recommends that during breastfeeding the mother hold the child in a position in which his or her mouth is lower than the ears (with baby's chin tucked slightly) in order to improve long-term oral-motor skill levels. Sears, W. and Sears, M. The Baby Book: Everything You Need to Know About Your Baby - From Birth to Age Two. Little Brown & Company, 1993, ISBN 0316779059. The authors, parents of a child with Down Syndrome, discuss breastfeeding babies with Down Syndrome (pp 181-182) and the special challenges and rewards of parenting these children (pp 395-400). Sears, M. and Sears, W. The Breastfeeding Book. Little Brown & Co., 2000, ISBN 0316779245. pp. 213-214. Stray-Gunderson, Karen, editor. Babies With Down Syndrome. Woodbine House, 1995, ISBN 0933149646. Timko, Shelly Wright, Yvonne D. Culp, Julia G. Pindell, and Roseanne Harakal. Lactation Consultant Series, Unit 9: Breastfeeding the Baby with Down Syndrome. Garden City Park, New York: Avery Publishing Group, 1986,. ISBN 0895293331. This unit describes the genetic causes and the conflicts mothers may experience in their decision to breastfeed the baby with Down Syndrome. (No 382-19 in the LLLI catalog.)
Internet resourcesBreastfeeding a baby with Down SyndromeWelcome To Holland by Emily Perl Kingsley Special Advantages of Nursing Your Baby with Down Syndrome by Becky Flora, BSed, IBCLC Breastfeeding a Baby with Down Syndrome from the Australian Breastfeeding Association
Breastfeeding Your Baby with Down Syndrome from the New Zealand Down Syndrome Association Nursing baby with Down's Syndrome (Q&A) by Cher Sealy, RN, BSN, IBCLC, LLLL Nursing a baby with Down Syndrome (Q&A) by Anne Smith, BA, IBCLC Nobody Smiles Like I Do (Breastfeeding a Baby with Down Syndrome and a Heart Condition) by Dee Cole. NEW BEGINNINGS, Vol. 15 No. 4, July - August 1998, p. 105. A Father's Loving Care (Parenting a Baby with Down Syndrome) by Cecily Woodard-Spencer. NEW BEGINNINGS, Vol. 15 No. 2, March - April 1998, p. 46-47. Breastfeeding Babies with Special Needs. La Leche League International FAQ. Congenital Disorders: Implications for Breastfeeding by Cynthia Good Mojab, MS. LEAVEN, Vol. 35 No. 6, December 1999-January 2000, pp. 123-28. Discusses how a LLL Leader can provide information and support to mothers of babies with special needs. Helping a Mother with a Baby Who Is Reluctant to Nurse by Karen Zeretzke, MED, IBCLC, RLC. LEAVEN, Vol. 35 No. 5, October-November 1999, pp. 99-103. A challenging situation can become a rewarding experience when a Leader knows how to help. Online Booklet on Down Syndrome from the The Down Syndrome Association of Western Australia. Section 4: Feeding includes information and personal stories about nursing a baby with Down Syndrome. Nurturing the Special Infant. An About.com multi-guide feature dedicated to raising awareness about the healthy benefits of breastfeeding your precious baby. Tips and tricks for breastfeeding an infant with a hypotone (weak) mouth region by Silvia Drechsel, a mother who has successfully breastfed her son who has neurological problems.
General InformationDown Syndrome: Health Issues by Dr. Len Leshin, MD, FAAP. This website, created by a pediatrician who has a son with Down Syndrome, is an excellent source of information and resources. Down Syndrome by William Sears, MD. Parenting experts William and Martha Sears have a son with Down Syndrome. This is the portion of their parenting site that discusses Down Syndrome. Welcoming Babies with Down Syndrome by Pam Wilson Parenting A Child with Down Syndrome by Rachael Smith. A mother's view of Down Syndrome, from Suite101.com Down Syndrome support board at ParentsPlace.com Down Syndrome Resources from About.com Ask NOAH About Genetic Diseases: Down Syndrome Growth Charts for Children with Down Syndrome by Greg Richards Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision edited by William I. Cohen, MD. From Down Syndrome Quarterly, Volume 4, Number 3, September, 1999. Special Families Guide: Robert Naseef, Ph.D. Children with special needs can be endearing, lovable, and extremely challenging. On this site, psychologist, author, and parent Robert Naseef, Ph.D., shares his insights and experiences on family life for parents, siblings, and children with special needs. Dr. Naseef also has a Q&A column.
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